Projects
Research projects and data analysis portfolio
Active Research Projects
Caregiver Burden in Pediatric Intestinal Failure
Status: Active | Funding: To be added
Families caring for children with intestinal failure face unique challenges including complex medical regimens, frequent hospitalizations, and significant lifestyle modifications. This project aims to:
- Develop and validate instruments to measure caregiver burden specific to pediatric intestinal failure
- Identify modifiable factors associated with caregiver strain
- Design interventions to support families
Key Methods: Survey development, psychometric validation, mixed methods
Multi-Center Outcomes in Pediatric Short Bowel Syndrome
Status: Active | Funding: To be added
Leveraging multi-center registry data to understand long-term outcomes in children with short bowel syndrome. Research questions include:
- Predictors of intestinal adaptation and enteral autonomy
- Risk factors for complications including catheter-related bloodstream infections
- Health-related quality of life outcomes
Key Methods: Cohort studies, survival analysis, machine learning
Health Equity in Pediatric GI Care
Status: Active | Funding: To be added
Examining disparities in access to specialized care and outcomes for children with complex gastrointestinal conditions:
- Geographic variation in access to intestinal rehabilitation programs
- Socioeconomic and racial/ethnic disparities in outcomes
- Policy implications for improving equity
Key Methods: Administrative data analysis, geospatial analysis, mixed methods
Data Analysis Portfolio
Interactive Visualizations
Coming soon - Interactive data visualizations and dashboards demonstrating analytical capabilities.
Code & Reproducibility
Selected code repositories and reproducible research materials:
Tools & Methods
Statistical Analysis
- R / RStudio
- Stata
- SAS
- Python
Machine Learning
- scikit-learn
- tidymodels
- XGBoost
Data Visualization
- ggplot2
- Shiny
- Quarto
- Tableau
Other Tools
- REDCap
- Git/GitHub
- SQL
- LaTeX
Collaborations
We welcome collaborations with researchers, clinicians, and patient advocates interested in improving outcomes for children with intestinal failure and their families.
Interested in collaborating? Contact us.