Projects
Research projects and data analysis portfolio
Active Research Projects
Caregiver Strain in Gastrointestinal Chronic Complex Conditions (GI CCCs)
Status: Active | Funding: To be added
Families caring for children with GI CCCs face unique challenges including complex medical regimens, frequent hospitalizations, and significant lifestyle modifications. This project aims to:
- Develop and validate instruments to measure caregiver strain
- Identify modifiable factors associated with caregiver strain
- Design interventions to reduce caregiver strain
Key Methods: Survey development, psychometric validation, mixed methods
Clinical Outcomes in Pediatric Short Bowel Syndrome
Status: Active | Funding: NA
Leveraging multi-center registry data to understand long-term outcomes in children with short bowel syndrome. Research questions include:
- Predictors of intestinal adaptation and enteral autonomy
- Risk factors for complications including catheter-related bloodstream infections
- Health-related quality of life outcomes
Key Methods: Cohort studies, survival analysis,
Data Analysis Portfolio
Interactive Visualizations
Coming soon - Interactive data visualizations and dashboards demonstrating analytical capabilities.
Code & Reproducibility
Selected code repositories and reproducible research materials:
Tools & Methods
Statistical Analysis
- R / RStudio
- Stata
Machine Learning
- tidymodels
Data Visualization
- ggplot2
- Shiny
- Quarto
Other Tools
- REDCap
- Git/GitHub
- SQL
- LaTeX
Collaborations
We welcome collaborations with researchers, clinicians, and patient advocates interested in improving outcomes for children with GI CCCs and their families.
Interested in collaborating? Contact us.